Jwheel86 Posted August 10, 2022 Share Posted August 10, 2022 Alice Wong is an institution in the disability community, her experience is insanely common. It's a difficult read but worth it. My ICU Summer: A Photo Essay – Disability Visibility Project DISABILITYVISIBILITYPROJECT.COM My ICU Summer: A Photo Essay Alice Wong Content notes: medical trauma, hospitalization, blood, systemic ableism, death, anxiety This is a semi-accurate account of what happene… 2 Quote Link to comment Share on other sites More sharing options...
Uaarkson Posted August 10, 2022 Share Posted August 10, 2022 Being in the hospital for a few days because you got rhabdomyolisis from heroin use is bad enough, I can’t imagine spending weeks or even months in an ICU. Quote Link to comment Share on other sites More sharing options...
Bloodporne Posted August 10, 2022 Share Posted August 10, 2022 It's always hard to quantify what the absolute biggest shitstain on this country actually is but the healthcare system and the American treatment, and view, of the sick, elderly and disabled has to be Top 3. Just totally transparent disdain. I had a three week hospital stay in the mid-2000s and it ruined my life for years after. 1 3 Quote Link to comment Share on other sites More sharing options...
Commissar SFLUFAN Posted August 10, 2022 Share Posted August 10, 2022 3 minutes ago, Bloodporne said: It's always hard to quantify what the absolute biggest shitstain on this country actually is but the healthcare system and the American treatment, and view, of the sick, elderly and disabled has to be Top 3. Just totally transparent disdain. I had a three week hospital stay in the mid-2000s and it ruined my life for years after. I've pretty much decided that when I get to be "elderly" that I'm going to move back to Trinidad and spend the last remaining years of my life there. Quote Link to comment Share on other sites More sharing options...
TUFKAK Posted August 10, 2022 Share Posted August 10, 2022 Knowing the institution like I do I am not even slightly surprised by this. 1 Quote Link to comment Share on other sites More sharing options...
Bloodporne Posted August 10, 2022 Share Posted August 10, 2022 16 minutes ago, Commissar SFLUFAN said: I've pretty much decided that when I get to be "elderly" that I'm going to move back to Trinidad and spend the last remaining years of my life there. This is exactly why I fought my ass off for that sweet dual citizenship with Germany. Fuck this. PS: Not sure why right now but I decided to check out architecture in Trinidad since I don't know shit about the island quite frankly and I'd love to see some of this in person. Quote Link to comment Share on other sites More sharing options...
Commissar SFLUFAN Posted August 10, 2022 Share Posted August 10, 2022 2 minutes ago, Bloodporne said: This is exactly why I fought my ass off for that sweet dual citizenship with Germany. Fuck this. PS: Not sure why right now but I decided to check out architecture in Trinidad since I don't know shit about the island quite frankly and I'd love to see some of this in person. I'm assuming you saw pictures of the "Magnificent Seven" mansions? Quote Link to comment Share on other sites More sharing options...
Kal-El814 Posted August 10, 2022 Share Posted August 10, 2022 2 minutes ago, Bloodporne said: PS: Not sure why right now but I decided to check out architecture in Trinidad since I don't know shit about the island quite frankly and I'd love to see some of this in person. I’m only 64% sure this post isn’t about Nicki Minaj’s ass 1 Quote Link to comment Share on other sites More sharing options...
Commissar SFLUFAN Posted August 10, 2022 Share Posted August 10, 2022 This story is really, really difficult to read. I simply cannot conceive living with such a condition Quote Link to comment Share on other sites More sharing options...
Bloodporne Posted August 10, 2022 Share Posted August 10, 2022 5 minutes ago, Commissar SFLUFAN said: I'm assuming you saw pictures of the "Magnificent Seven" mansions? Actually no, I kind of street viewed some random things. I have a weird obsession with "Google Maps tourism" where I go to random countries that interest me and just street view totally random places to get an idea. 5 minutes ago, Kal-El814 said: I’m only 64% sure this post isn’t about Nicki Minaj’s ass Eh. I'm more of a Rihanna's ass kind of man. Quote Link to comment Share on other sites More sharing options...
Kal-El814 Posted August 10, 2022 Share Posted August 10, 2022 11 minutes ago, Commissar SFLUFAN said: This story is really, really difficult to read. I simply cannot conceive living with such a condition One of the many, many, many reasons I know that we are not a "Christian nation" and anyone who purports that we are immediately goes onto my shit list is the extent to which we deliberately deprioritize taking care of the sick, the disabled, the elderly, etc. 3 Quote Link to comment Share on other sites More sharing options...
Jason Posted August 10, 2022 Share Posted August 10, 2022 56 minutes ago, Commissar SFLUFAN said: I've pretty much decided that when I get to be "elderly" that I'm going to move back to Trinidad and spend the last remaining years of my life there. And spend your final years in a third world shithole? Oh, right... Quote Link to comment Share on other sites More sharing options...
Bloodporne Posted August 10, 2022 Share Posted August 10, 2022 29 minutes ago, Kal-El814 said: One of the many, many, many reasons I know that we are not a "Christian nation" and anyone who purports that we are immediately goes onto my shit list is the extent to which we deliberately deprioritize taking care of the sick, the disabled, the elderly, etc. My ex worked in Assisted Living homes and for those agencies that do home care for many years and the absolute horror stories I heard from her about rampant abuse, sheer malevolence and disdain always stuck with me. According to her what's worse is that nobody gives a fuck. They continuously get slaps on the wrist and if shit gets too crazy they just go out of business and start a new company. I couldn't help but think that this is what "Our Freedom!!! Small Government!!!" looks like in practice. Quote Link to comment Share on other sites More sharing options...
Jwheel86 Posted August 10, 2022 Author Share Posted August 10, 2022 1 hour ago, Bloodporne said: My ex worked in Assisted Living homes and for those agencies that do home care for many years and the absolute horror stories I heard from her about rampant abuse, sheer malevolence and disdain always stuck with me. According to her what's worse is that nobody gives a fuck. They continuously get slaps on the wrist and if shit gets too crazy they just go out of business and start a new company. I couldn't help but think that this is what "Our Freedom!!! Small Government!!!" looks like in practice. Yup, that's why Consumer Direct models are way better, let the individual or family do the hiring and firing, training is overrated. Quote Link to comment Share on other sites More sharing options...
Jason Posted August 10, 2022 Share Posted August 10, 2022 1 hour ago, Jwheel86 said: Yup, that's why Consumer Direct models are way better, let the individual or family do the hiring and firing, training is overrated. But if we let family members get paid for taking care of their own then poor people might get money. Quote Link to comment Share on other sites More sharing options...
Remarkableriots Posted August 10, 2022 Share Posted August 10, 2022 1 hour ago, Jwheel86 said: Yup, that's why Consumer Direct models are way better, let the individual or family do the hiring and firing, training is overrated. You have to have something setup for individuals without family who can't make those decisions. Some people in these facilities have family unwilling to take care of them because they consider them unwanted burdens. Quote Link to comment Share on other sites More sharing options...
Chadatog Posted August 10, 2022 Share Posted August 10, 2022 6 minutes ago, Remarkableriots said: You have to have something setup for individuals without family who can't make those decisions. Some people in these facilities have family unwilling to take care of them because they consider them unwanted burdens. Why not both.gif Quote Link to comment Share on other sites More sharing options...
b_m_b_m_b_m Posted August 10, 2022 Share Posted August 10, 2022 2 hours ago, Jason said: But if we let family members get paid for taking care of their own then poor people might get money. Private industry has no problem doing it Quote Link to comment Share on other sites More sharing options...
Jwheel86 Posted February 22, 2023 Author Share Posted February 22, 2023 Alice is now writing for CNN and her first piece is an update on her situation. What I've learned being reliant on a caregiver | CNN WWW.CNN.COM After spending a month in the ICU, Alice Wong relied on caregivers to have a normal life. She reflects on that experience, arguing that the devaluation and lack of investment in care work is an issue that needs to be addressed. Quote Link to comment Share on other sites More sharing options...
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