Jump to content

Jwheel86

Members
  • Posts

    5,706
  • Joined

  • Last visited

  • Days Won

    2

Everything posted by Jwheel86

  1. SMA community is starting to panic, a lot of hospitals are cancelling Spinraza doses. There is a good argument that the dose is too low or not frequent enough, so going beyond the normal 4 month period is going to really suck, especially since a pulmonary infection is not the ideal time for a muscular decline.
  2. Fun story, Danbury Hospital almost killed me. When I was 5 years old I got the flu and was admitted to Danbury Hospital instead of the Muscular Dystrophy Association certified hospital 2 hours away. The pulmonary doctor at Danbury Hospital insisted everything my parents learned about fighting pulmonary infections from the MDA hospital was wrong and instead just put me on oxygen, no assistive cough, no Neb treatments, no suction. He was also unavailable through the night and refused to consult MDA doctors (my local pediatrician had to come in at 2 am). 12 hours later I was on 100% oxygen and the pulmonary doctor told my parents "I don't know what to do". My Dad insisted I be transferred, a LifeStar helicopter rushed me to UCONN without my parents aboard (little scary for a 5 year old who can't breath). The pilot told my Dad don't try and race his helicopter, otherwise he'll have to pick my parents up too. I landed and the doctors there put me on bipap for the first time (I'm now terrified as they are shoving a mask over my face that's pumping air into my chest at high pressures). My parents arrived and 12 hours later I was off oxygen and in my wheelchair eating ice cream. I saw the UCONN pulmonary team then on until I was 18, fuck Danbury Hospital.
  3. I'd like it noted for the record for use in the Scarecrow People's Court that I, Jwheel86, can not physically touch my face and am therefore not a part of the problem. In fact I would like to stipulate that this therefore makes me genetically superior in the end times.
  4. Interesting, I'm on lisinopril to protect my kidney from kidney protein which is a side effect from Spinraza. Thanks Biogen...?
  5. Presidential and Vice Presidential term automatically expire unless the EC or Congress act, if not then the Speaker takes over.
  6. As am I, discussed today with my aide the possibility of her and her husband effectively moving in when shit hits off here.
  7. Harry's exile to Canada was a covert action to insert him as the Prince of Canada to reestablish the glory of the House of Windsor.
  8. The difference being a Sanders would be willing to primary democrats who go against his policy, Biden won't.
×
×
  • Create New...