Jwheel86

wtf

Fun story, Danbury Hospital almost killed me. When I was 5 years old I got the flu and was admitted to Danbury Hospital instead of the Muscular Dystrophy Association certified hospital 2 hours away. The pulmonary doctor at Danbury Hospital insisted everything my parents learned about fighting pulmonary infections from the MDA hospital was wrong and instead just put me on oxygen, no assistive cough, no Neb treatments, no suction. He was also unavailable through the night and refused to consult MDA doctors (my local pediatrician had to come in at 2 am). 12 hours later I was on 100% oxygen and the pulmonary doctor told my parents "I don't know what to do". My Dad insisted I be transferred, a LifeStar helicopter rushed me to UCONN without my parents aboard (little scary for a 5 year old who can't breath). The pilot told my Dad don't try and race his helicopter, otherwise he'll have to pick my parents up too. I landed and the doctors there put me on bipap for the first time (I'm now terrified as they are shoving a mask over my face that's pumping air into my chest at high pressures). My parents arrived and 12 hours later I was off oxygen and in my wheelchair eating ice cream. I saw the UCONN pulmonary team then on until I was 18, fuck Danbury Hospital.

Episode 1 came out last night, different but I liked it.

CT, NY, NJ form alliance.

NC just closed the schools.

I'd like it noted for the record for use in the Scarecrow People's Court that I, Jwheel86, can not physically touch my face and am therefore not a part of the problem. In fact I would like to stipulate that this therefore makes me genetically superior in the end times.

Interesting, I'm on lisinopril to protect my kidney from kidney protein which is a side effect from Spinraza. Thanks Biogen...?

Presidential and Vice Presidential term automatically expire unless the EC or Congress act, if not then the Speaker takes over.

Cross him off the list for VP.

As am I, discussed today with my aide the possibility of her and her husband effectively moving in when shit hits off here.

Harry's exile to Canada was a covert action to insert him as the Prince of Canada to reestablish the glory of the House of Windsor.

So how's it kill you?

What is a dry cough? For my pulmonary issues congestion is the biggest issue.

Acting President Pelosi is an actual possibility now.

The difference being a Sanders would be willing to primary democrats who go against his policy, Biden won't.

Already seeing ads saying the public option is the same thing as Medicare for All.

Assuming the public option is actually affordable and usable.

5 new cases in North Carolina, all connected to the Biogen meeting in Boston.

Guess I won't be seeing my Biogen case worker soon.

No idea. There is no way this is the first guy needing a Braille test and there is no way Disability Rights Advocates would have allowed there not to be an exception to the requirement. Maybe the Braille test requires a contractor to grade it, but my guess is all test accommodations (scribe, dictation, extra time, environment, etc) allowed in the procedures are lumped together requiring the doctor's note.

Unbendable bureaucratic procedure which gives low level officials no discretion. There is no reason beyond that, it's that simple.

Unfortunately bullshit like this is pretty common. When I requested accommodations to take the GRE I submitted my "cripple letter" signed by one of the best specialists in SMA, but since the letter was 5 years old it was rejected because I "may have improved". That's not a thing with SMA (at least wasn't in 2011 and still isn't for SMA adults) and anyone evaluating accommodation letters should know that, SMA isn't rare. I had to go to Student Health and ask a random doctor (who initially confused SMA with MS...) to copy paste the letter with his signature. That was accepted.